After a long ᴛι̇ɱe of crying, we looked into each other’s eyes, embraced, and my spouse whispered in my ear, ‘Let’s keep going.’Would you be interested? I promptly responded, “Of course, I will.” We chose to continue the pregnancy in order to give Heliay a chance. We immediately sought alternative medical options, but the ews continued to worsen. Nearly all of the doctors recommended terminating the pregnancy because they believed Heliay would die in my womb or, if we were fortunate, she would be delivered alive but expire shortly after delivery. I have always believed in God and remained true to my fundamental convictions. He complied with my request.
On August 21, 2015, at 39 weeks gestation, Heliay was delivered via C-section, weighing 10 pounds and measuring 18 inches.
The first few days were challenging. Due to my coditio, I was only able to see her after 24 hours. The rses started murmuring that I didn’t want to see my own daughter and that I was rejecting her. After hearing such compliments, I decided to consume p eve because I was feeling extremely pa. I stroked her face and massaged her hands and feet when I first met Heliay. “Your mother is present,” I informed her. I concede that her appearance may appear average to the majority of individuals. Her ead contained three protrsios in places where her k was improperly formed. Heliay had no brows and a veil of her head that appeared to be about to dissolve. Her eyes and nostrils were nonexistent, and she could not breathe through her two asal openings. She was attractive in her own right, in my opinion.
We had to monitor her sleep every night during her first few months of life due to her respiratory difficulty. In the event that Heliay required assistance, my husband, mother-in-law, and I worked three-hour shifts. It was ᴛι̇ɱe for her first itervetio (the installation of the valve in her ead to control the passage of her a) after a few months. The same tale was repeated, and the anesthesiologist expressed doubt that Heliay would survive this operation. But I was confident that my daughter would return to life, and the ey was a success; Heliay did not disappoint me. I give thanks to God because everything has thus far gone smoothly. She underwent two additional surgeries to correct a clubfoot and eeae her lip. We have been unable to perform additional operations on Heliay (craiofacial reconstruction, eye prosthesis, asal pyramid, and others) due to a lack of funds.
Unfortunately, ɱaпy people disparage her (and me), but my response is that things can change in an instant and you can find yourself completely dependent on others. I query, “Do you not deserve to live longer?” Society desires to propagate equality, but rarely implements it in practice if you are not ‘ormal.’ We attempt to live a normal existence and include Heliay in all of our activities despite this. We attend her birthday parties and other special occasions with her. We are delighted to be Heliay’s parents despite the ps ad dow and this long, arduous journey.”
This story was contributed by Soleays Arolia Lgo Estrada of Saristóbal, Veezela for Love What Matters. They can be followed on Instagram at jorey. Submit your own article here, and sign up for our complimentary e-newsletter to receive our best stories.