Jaxon Buell, the boy who was born without part of his brain, died at the age of 5. His case went around the world since August 27, 2014, he was nicknamed “Jaxon Strong” for his courage in clinging to life having such an extreme brain malformation.
On April 1, Jaxon passed away in North Carolina, according to his parents.
Jaxon was born in Orlando, Florida with microhydranencephaly, a developmental abnormality that affects the brain. He was missing 80% of his brain, the cerebellum, the area responsible for controlling movement, coordination and balance, was the most affected part.
According to doctors, they presume that his brain stopped forming a few weeks after he was conceived.
During the pregnancy there were no complications until week 17, when an ultrasound determined that part of her brain was missing. Then they did a series of diagnostic tests.
Brandon Bruell, father of Jaxon, 35, recounted how the last moments of the little boy were.
“He passed away in my arms and surrounded by his parents and family who loved him and offered him comfort and endless hours of snuggling during his final days,” Brandon recounted.
“Eventually Jaxon passed away, when his body and organs stopped working, as children like him often do. This had absolutely nothing to do with ᴄoⱱι̇ɗ-19, but it was something that we always knew, from the beginning, that it would possibilly happen. We just didn’t know when.”
Jaxon recently entered hospice after her health worsened, the family is preparing to say their last goodbyes.
“Jaxon’s legacy is about her strength and her incredibly sweet spirit. He really made me, his mother, his family and all those who learned from his story better people, ”said the boy’s father.
“There is a miracle behind Jaxon’s story. We want other families to know that even when there is a dark situation, every life should be celebrated, ʋcherished and cherished,’ Brandon said.
When Jaxon was diagnosed, doctors told her parents they didn’t know if she would be born with ʋida. But the little one let out a scream when he came into the world via caesarean section at 37 weeks gestation.
He was very small and his head was not fully developed, but his parents focused on his beautiful bright eyes and his desire to ʋiʋir.
He had to stay in the neonatal intensive care unit for three and a half weeks, his heartbeat was strong and he was breathing normally.
“The doctors told us that there was nothing they could do to save his life, that the only option was to take him home and offer him comfort,” Brandon recounted in 2015.
Jaxon’s parents had to learn how to use a feeding tube, as well as deal with his seizures and periods of extreme irritability.
Jaxon had fuzzy vision, but his hearing was good, he smiled often, and was comfortable at home. And although the doctors said that he would not complete his first year of life, he turned all the odds on.
As she grew, thanks to therapy sessions she progressed. He didn’t have any voluntary movements, but after she was 2 years old she ɱaпaged to pucker her lips to give Ƅesses.
In December 2017, he was brought to meet Santa Claus, and his image in Santa’s arms moved thousands of people.
Indeed, as Brandon said, there is a miracle behind his little boy’s story and he will always remain in everyone’s hearts. Let’s share a comforting message with his family in such hard ᴛι̇ɱes.